Sunday, December 18, 2011

Carolina Camacho - Operation Smile Educations Manager


Working in partnership with the Palestinian Cleft Society, Operation Smile conducted an American Heart Association’s (AHA) Basic Life Support (BLS) training program at the Government Hospitals in Ramallah, Jenin and Hebron. This course was developed to provide healthcare professionals with the ability to recognize several life-threatening emergencies, provide Cardiac Pulmonary Resuscitation, use an Automatic External Defibrillator, and relieve choking in a safe, timely and effective manner. Training was conducted between December 2nd and December 10th and provided instruction for 123 local doctors and nurses, of which 23 were certified as instructors and 100 as providers. The new instructors and the members of Juzoor, a local organization that conducts life support training, are committed to future implementation of AHA certified courses. Conversations to bring Pediatric Advance Life Support (PALS) in May 2012 have already started between the partners.

Operation Smile is a humanitarian nonprofit organization that provides effective reconstructive surgery for children born with facial deformities such as cleft lip and cleft palate. In addition to its surgical work, the organization also provides training to local volunteers to ensure that every child receives quality care every time and everywhere they receive surgery. The program just completed in Palestine exemplifies the organization’s commitment towards sustainability at the local level.

Thursday, December 15, 2011

A researcher's note from the December 2011 mission


I am a 4th year medical student at the University of North Carolina at Chapel Hill interested in public health and Palestine. I have been developing a congenital anomalies database for the past several months in order to meet three primary goals: (1) to determine the incidence and prevalence of congenital anomalies in the West Bank and Gaza; (2) to help understand the causes of such anomalies in the Palestinian population; and (3) to lay the foundation for a nation-wide health care registry.

During the December 2011 Palestinian Cleft Society mission, I administered this congenital anomalies database for the first time. This pilot involved interviewing the parents of patients undergoing surgeries by the team. The patients were primarily children with congenital anomalies, such as cleft lip and palate, as well as microtia. Many of the children had speech difficulties and some were syndromic, having an array of other major health issues. My pilot will hopefully help me assess whether or not I am collecting quality data. I intend to maximize the quality of the data I collect in order draw accurate conclusions regarding congenital anomalies in the West Bank and Gaza.

During my time in the West Bank, I interviewed the parents of patients using a 500-question survey. I conducted these interviews in Jenin and Hebron Governmental Hospitals. I asked questions regarding the health status of the patient and his or her family, and learned a great deal about the socio-cultural elements that affect health and health care access. In the setting of military occupation, I learned that many of the patients struggle to receive care for the treatment of complex conditions such as cleft lip and palate. For example, prior to the founding of the Palestinian Cleft Society (PCS), no Palestinian providers were trained to treat clefts. As a result, patients had to travel to surrounding countries in order to receive essential care or wait for foreign surgical teams to provide this care. Those patients who were unable to afford the expense of traveling for care often lived with their disfiguring conditions. PCS is helping close a gap in health care in the West Bank, but there are still many vast gaps that need attention. Yet many of these gaps are a consequence of the occupation, which limits resources available to Palestinians and restricts patient ability to travel.

My interviews illuminated many environmental factors that may play a role in the development of congenital anomalies. When querying parents about toxin exposure during pregnancy, several mothers admitted to major gas inhalation during pregnancy as a result of political conflict. Additionally, many of the parents live in villages or refugee camps, which largely rely on rain as their primary water source. I also found that amenities such as heating and air conditioning, which are present everywhere in the United States, were infrequent within the sample of parents I interviewed. While a lot of these environmental concerns are not surprising, I believe that it is important to document them in order to study whether or not they affect the health status of a pregnant Mother’s unborn child.

While I was able to conduct 47 interviews and to train local staff to conduct interviews, I found that my time in Palestine flew by too fast. I was overwhelmed by the warmth and kindness of the people I encountered. I was repeatedly humbled by the commitment shown by the Palestinians working with children with congenital anomalies. The health care providers worked long-days and showed tremendous compassion towards their patients. The team worked together to perform over fifty surgeries in two and a half weeks. This meant that the surgeons were in the operating room for about twelve hours a day and the speech pathologists were working with patients throughout that time. All of the providers worked hard with the shared goal of providing essential care for Palestinian children in need.

During my time in Palestine I learned most from the people around me and I look forward to my return in May.

Saturday, December 3, 2011

Screening in Jenin and Ramallah

PCS has sponsored three screening sessions for Palestinians with clefts: in Jenin on November 26th; in Ramallah on December 3rd, and in Hebron on December 4th (See attached pictures). Over 200 patients with clefts were evaluated. In addition, many patients with ear and nasal abnormalities, and facial burns were seen and evaluated.
Our surgery schedule in Hebron begins on December 5, 2011.
We’ll continue to give you updates.

Friday, December 2, 2011

Palestine Cleft Society Conference in Ramallah


The theme for this year’s conference was “Partnerships: Patients, Families and Cleft Practitioners.” We enjoyed an informative conference on the need for partnerships in among Palestinians in the care of children with clefts. Palestinian speakers were joined by supporting faculty from the United States (See Syllabus).Topics ranged from the genetics of clefting to the need for partnering with the Palestinian Ministry of Health. Palestinian surgeons, nurses, physiotherapists, speech pathologists, dentists and orthodontists participated. Participants also came from several local universities, including Al Quds University, Bir Zeit University, An Najah University, and The Arab American University of Jenin.

Speech and Language Pathologists provided the basics of speech evaluation in patients with clefts. Surgeons emphasized the importance of partnerships with other disciplines. Researchers discussed the development of a database. Geneticists gave useful insight on novel mutations among Palestinians that cause syndromic clefting. Nurses discussed important aspects of care including feeding, coping strategies, and the need for social worker holistic evaluation of patients and their families. But most importantly, patients and families shared personal stories about living with the stigma of clefts.