Tuesday, November 29, 2011

Jenin 2011

The team arrived in Palestine on Friday November 25th and began screening patients at Jenin Government Hospital on Saturday November 26th. While 3-4 surgeries of cleft lip and palate patients have been taking place daily, I have been conducting hour long interviews with the parents of each patient. These interviews involve gathering extensive information that will hopefully allow us determine the cause of this condition. This work is just the beginning of a long process.

Wednesday, November 16, 2011

A Call to Action - Donate to the Baby Adam Fund Today!


Adam Paulraj was born in India with a condition called Bartsocas-Papas Syndrome. This genetic syndrome causes severe craniofacial, limb, and genital abnormalities.


To have a meaningful life with this syndrome, Baby Adam will require multiple surgical procedures and long-term, advanced medical care. In order to receive this essential care, Baby Adam needs your help. UNC Hospitals will be providing care for Baby Adam. The Palestinian Cleft Society is supporting UNC’s efforts.

You too can help Baby Adam receive the care he needs!

Send checks for The Baby Adam Fund to:
The Medical Foundation of North Carolina
880 MLK Jr. Boulevard, CB#7565
Chapel Hill, NC 27514-2600

All donations are tax-deductible.
http://palestiniancleftsociety.com/ourwork/babyadam

Monday, November 7, 2011

Upcoming Conference Dec 2, 2011

Palestinian Cleft Society 5th Annual Conference
December 2, 2011 Partnerships: Patients, Families and Cleft Practitioners – Red Crescent Society Building, Al Bireh, Palestine 7:30 AM – 4:00 PM

Sponsored by the Palestinian Cleft Society; Funded by SmileTrain; In Partnership with Operation Smile and Resurge

Schedule of Events:

7:30 – 8:00 AM: Breakfast

8:00 – 8:15 AM: Opening Remarks Moanad Aker, President PCS/Moderator; Hanin Al-Sheikh, Vice President, PCS

8:15 – 8:30 AM: Wa’el Halaby, DMD: “The Value of Volunteering: A PCS Member’s Experience in War-torn Libya”

8:30 – 8:45 AM: Rushdi Amr, DMD: “Building Partnership with Operation Smile”

8:45 – 9:00 AM: Hanin Al-Sheikh, SLP: “Building Community with other Volunteer and Charitable Organizations”

9:00 – 9:15 AM: Moanad Aker, DDS: “Partnerships with Palestinian Institutions”

9:15 – 9:30 AM: Reham Zetawi, BA: “Partnering with Families of Children with Clefts”

9:30 – 9:45 AM: Operation Smile Basic Life Support Course Leaders: “Partnering Through Training Health Care Practitioners in Palestinian Hospitals”

9:45 – 10:00 AM: Libby Wilson, MD: “Pitfalls to Partnerships on Cleft Teams”

10:00 – 10:15 AM: Hashem Shahine, PhD: “Partnerships in Genetics Research: Helping Families Understand the Causes of Clefting”

10:15 – 10:30 AM: Emad Abdel Khalek Hussein, DDS: “Clinical Cleft Research: A Key to Partnerships?”

10:30 – 11:00 AM: Break

10:45 – 11:00 AM: Sayf Saed, MD: “Pierre Robin Sequence: A Case Report”

11:00 – 11:15 AM: Khalil Albaba, MD: “The Role of ENT in Patients with Clefts”

11:15 – 11:30 AM: Alison Dybdal, SLP: “Speech Assessment After Palate Repair”

11:30 – 11:45 AM: Cindy van Aalst, RN: “The Importance of Nursing in Cleft Care”

11:45 AM – 12:00 PM: Emad Abdel Khaled Hussein, DDS: “Clefting Rates in Palestine: The Makassad Experience”

12:15 – 12:30 PM: John van Aalst, MD: “Complications after Cleft Surgery”

12:30 – 12:45 PM: Hala Borno, BS: “Development of a Registry to Follow Congenital Anomalies in Palestine”

12:45 – 1:00 PM: Hashem Sahine, PhD: “Syndromic Cleft Palate in a Consanguineous Palestinian Family”

1:00 – 1:30 PM: Family Cases: Experience of Families with Children who have Clefts: “Finding Cleft Care in Palestine”

2:00 – 3:00 PM: Lunch

4 PM: Adjourn for Fundraising Event

6 – 9 PM: Red Crescent Society, Al Bireh, Palestine

Dinner: Traditional Palestinian Dancing/Singing

Faculty: Moanad Aker, DDS, Jerusalem, Palestine (President, PCS); Khalil Al Baba, MD: ENT Department, Hebron Government Hospital; Hanin Al-Sheikh, SLP, Ramallah Palestine (Vice President, PCS); Rushdi Amr, DDS: Hebron, Palestine; Jafar Ayesh: OMFS, Hebron, Palestine; Hala Borno, BS, 4th year Medical Student, UNC; Wa’el Halaby, OMFS, Ramallah, Palestine (Secretary, PCS); Emad Abdel Khalek, DDS (Chair of Research Committee, PCS); Nasr Jafr, MD: ENT, Jenin Government Hospital, Jenin, Palestine, Operation Smile Basic Life Support Course Leaders; Sayf Saed MD: Plastic Surgeon, Beit Sahour, Palestine (Treasurer, PCS); Alison Dybdal, SLP: Los Angeles, CA, USA; Cindy van Aalst, RN: Chapel Hill, NC, USA; John van Aalst, MD: Plastic Surgeon, Chapel Hill, NC, USA; Libby Wilson, MD: Plastic Surgeon, Los Angeles, CA, USA

Thursday, November 3, 2011

Upcoming Events

The Palestinian Cleft Society is excited about its upcoming events.

Meetings -

Palestinian Cleft Society 5th Annual Conference
December 2, 2011 – Ramallah
Come join us for a series of talks on cleft care in Palestine.

Surgical Trips -

November 24, 2011 – December 12, 2011
The Palestinian Cleft Society in collaboration with surgeons from the United States will host screening days on 11/26 in Jenin, 12/3 in Ramallah, and 12/4 in Hebron. If you or your child is in need of care for a craniofacial anomaly, please attend a screening.